The last 2 months have been difficult. I have been in a flare up, which basically means, extreme fatigue, soreness and brain fog. In a flare, it's hard to get your mind working well enough to even know what is making you worse. It was very discouraging until I realized that it was a flare and that it would pass. I made some adjustments in my meds and this week has been much better. I have really felt pretty good. Tonight, I got together with friends. We were sitting around the kitchen, talking,laughing, sharing stories, giving and getting advise. And I was so grateful. A week ago, I could not have done this. I would have been to tired. I love my friends and am so thankful for the times that we are together. I know that it is very difficult,physically as well as psychologically, when I have a flare up, but in a weird way it is also a blessing. It makes me really appreciate the times when I feel sort of "normal". I don't think that I take those times for granted the way I have in the past.
I hope that writing about this will help me to remember next time that there are times that are hard but those times pass.I can't get stuck in a that place.
2 comments:
Hi -
Thanks for stopping by my blog and taking the time to comment - Dominique told me to expect you! Sounds like we might not be too far away - I'm in northern Delaware, very close to the PA border.
I read some of your blog entries here. Have you looked into the possibility of Lyme disease? Based on your symptoms and where you live, it is highly possible that you actually have Lyme and/or some of its co-infections. It is very frequently misdiagnosed as fibromyalgia and your symptoms fit perfectly.
Please feel free to e-mail if you'd like - you'll find an e-mail link on my profile page.
Nice to meet you!
Sue
Sue,
Sorry, I totally missed your comment. Shows how often I look at my blog! That really needs to change. I have had a plethora of tests,one of which was for Lymes. With negative labs, I haven't pursued it further. Do you know if you often get false negatives? No tick bite that I can remember, but I know people often miss that.
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